Table 1 Baseline characteristics of patient
Variables | n = 53 |
|---|---|
Age (months), median (min, max) | 82 (13, 537) |
Sex, n (%) | |
Male | 33 (62) |
Female | 20 (38) |
Domicile, n (%) | |
Java Island | 48 (90) |
Non-Java Island | 5 (10) |
Examination test, n (%) | |
DNA test | 43 (81) |
Others | 10 (19) |
Type of SMA, n (%) | |
Type 1 | 16 (30) |
Type 2 | 23 (43) |
Type 3 | 14 (26) |
Survival status, n (%) | |
Alive | 47 (89) |
Deceased | 6 (11) |
Tracheostomy, n (%) | |
Yes | 6 (11) |
No | 47 (89) |
Age at SMA suspicion (months), median (min, max) | 24 (1, 312) |
Age at definite SMA diagnosis (months), median (min, max) | 36 (1, 324) |
Posture, n (%) | |
Normal | 22 (42) |
Spinal deformities | 31 (58) |
Orthosis, n (%) | |
Spinal orthosis | 6 (11) |
Others | 11 (21) |
Both | 6 (11) |
None | 30 (57) |
Mobilization aid used, n (%) | |
Wheelchair | 37 (70) |
Cane | 1 (2) |
None | 15 (28) |
Caregiver, n (%) | |
Family | 36 (68) |
Professional healthcare worker | 4 (8) |
Both | 13 (25) |
Therapy, n (%) | |
Physiotherapy | 33 (62) |
Occupational therapy | 2 (4) |
Both | 12 (23) |
None | 6 (11) |